Baycrest

Palliative Care Manual 2016

Baycrest Health Sciences & Baycrest Foundation Publications

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Baycrest - End of Life Volunteer Manual 19 HELPING FAMILIES PROVIDE CARE AND TAKE ON NEW ROLES Volunteers can help families in their caregiving by: • Sharing their knowledge about comfort measures and about "tricks of the trade" the care team may have that will make the dying person more comfortable. • Being alert to the changing care needs of the dying person and reporting these to nursing. • Bringing any concerns about a family caregiver's ability to continue to provide care to nursing or another team member. SUPPORTING FAMILIES Volunteers can support families by: • Taking time to listen to family members and just "be there" for them • Paying attention to family members' feelings and changing moods • Offering to keep the dying person company so that family members can take a break and look after themselves • Remaining non-judgmental • Allowing family members to express their frustration and anger HELPING FAMILIES MANAGE STRESS AND CAREGIVER BURNOUT Volunteers may spend time with family members and are in a good position to recognize the signs of caregiver burnout: • Be aware of the caregivers' stress level and how much of a burden they feel their caregiving role is becoming to them • Encourage caregivers to stay healthy and help them to achieve this in practical ways (e.g. by offering to stay with the dying person while they go for a walk or have a rest). Don't just say it; create opportunities for the family member • Be aware of signs of caregiver burnout and help caregivers recognize the signs themselves

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