Baycrest

Palliative Care Manual 2016

Baycrest Health Sciences & Baycrest Foundation Publications

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Baycrest - End of Life Volunteer Manual 25 THE VOLUNTEER'S ROLE IN EMOTIONAL SUPPORT People who are dying and their families need: • Empathy: the feeling that someone understands their experience. • Permission: to express their thoughts or feelings, to be afraid or angry or withdrawn. • Individuality: to be treated as a person, to be asked about their needs and to not have people make assumptions about how they feel. • Advocacy: someone to speak on his or her behalf if necessary and advocate for their needs. • Truth: an accurate diagnosis and facts about their care and prognosis. • Time: to integrate their experience and have their questions answered. Concern about physical appearance: Someone who is dying may feel repulsive, freaky, dirty or unclean. They may be mourning the loss of their physical appearance and feel unattractive or unlovable. • Touch can provide comfort and reassurance, and help reduce the feeling of isolation or being alone. • Ask permission to touch the person if and when appropriate. Put an arm around them, hold their hand -touch can often mean more than words. Concern about their wills or funeral: Some people may be concerned about making or changing their will – or ensuring that people they know are given something of theirs to remember them by. • Listen but do not give advice or try to solve any problems. • Put them in touch with the appropriate support people

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